Right To Try

Hoosier Family Helps Push 'Right To Try' Nationally

Aug 10, 2017

A “Right To Try” bill that allows families to use prescription drugs that don’t have full FDA approval passed the U.S. Senate last week with unanimous support. U.S. Sen. Joe Donnelly (D-Ind.) helped author the legislation, modeled after an Indiana state law, with encouragement from a Hoosier mother and her son.

Jordan McLinn, 8, became the face of Indiana’s “Right To Try” bill in 2015. Last year his mother, Laura McLinn, visited Donnelly to lobby for a federal version.

Kreg Steppe / https://www.flickr.com/photos/spyndle/535493117

Senate lawmakers unanimously approved legislation Tuesday that its sponsor says will give “hope to the hopeless.” 

The Right to Try bill would allow terminally-ill patients to receive experimental drugs as long as they meet three standards.

Sen. Ed Charbonneau (R-Valparaiso), the bill’s sponsor says, first, the medications must have passed through the first of three phases in the FDA’s approval process.

Brandon Smith / Indiana Public Broadcasting

Senate lawmakers say they want to more time to work on a bill allowing terminally ill patients to try experimental drugs before sending the measure to the floor. 

The bill would help 5-year-old Jordan McLinn, who suffers from Duchenne Muscular Dystrophy.  Those afflicted with the fatal disease typically only live to about age 20. 

But Jordan’s mother, Laura McLinn, told a Senate panel that help could be on the way.  As Jordan sat in her lap, she told lawmakers about a new drug being developed to change Jordan’s type of Muscular Dystrophy into a milder version.